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Italian singer who duetted with Baglioni dies of ALS

Amedeo Grisi, 49,had stopped treatment for nerve-wasting disease

(ANSA) - ROME, FEB 16 - A 49-year-old Italian singer from Sanremo who duetted with then Sanremo Song Festival director and singer-songwriter Claudio Baglioni in an oratory in his home town in 2018 has died of Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig's Disease two years after voluntarily suspending treatment for the terminal nerve-wasting disease.
    Amedeo Grisi, who had had ALS or Motor Neurone Disease (MND) since 2015, wrote that "we ALS sufferers are allowed to decide whether to 'go ahead' by having a tracheotomy, which would mean a tube in the throat and other tubes in the stomach to be fed, nailed to a bed and with a hellish life expectancy, for two years; otherwise the other possibility is that of stopping and undergoing euthanasia. I chose the latter, because the first is not in me and because the desire is to once more be free".
    Grisi was happy about his duet with Baglioni but disappointed that he did not get to tread the hallowed Sanremo stage at the iconic Ariston Theatre.
    "I apologize to all the more sensitive people for having expressed this desire, but having aid that, now my time is up.
    Will it be a month, two, a week? I'm ready. I'm sure that for many I won't really go away. The power of music and love makes us immortal".
    Grisi recently published a book of poetry about his years of suffering and hope.
    Italy's Constitutional Court has ruled that a referendum on making euthanasia legal was not admissible because it did not protect the weak and vulnerable.
    A bill on end of life issues will start being voted on in the Lower House Thursday, but few right-to-die activists think that it will legalize euthanasia in Catholic Italy. (ANSA).
   

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